The 20 Best Porencephaly Doctors Near Me in Grand Rapids, MI

Find the Top Porencephaly Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 22 doctor with experience in Porencephaly near Grand Rapids, MI. Of these, 19 are Experienced and 3 are Advanced.

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22 providers found
    Marian M. Bercu
    Advanced in Porencephaly
    General Surgery
    Advanced in Porencephaly
    General Surgery

    Corewell Health Pediatric Neurosurgery - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    16+ years
    Languages Spoken:
    English

    Marian Bercu is a General Surgeon in Grand Rapids, Michigan. Dr. Bercu has been practicing medicine for over 16 years and is rated as an Advanced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Dandy-Walker Syndrome, Syringomyelia, Chiari Malformation Type 2, Syringobulbia, and Deep Brain Stimulation.

    Eric J. Kort
    Experienced in Porencephaly
    Pediatrics
    Experienced in Porencephaly
    Pediatrics

    Corewell Health Pediatric Hospitalists - Grand Rapids

    100 Michigan Street Northeast, Room 280, 
    Grand Rapids, MI 
     (0.4 miles away)
    Experience:
    20+ years
    Languages Spoken:
    English

    Eric Kort is a primary care provider, practicing in Pediatrics in Grand Rapids, Michigan. Dr. Kort has been practicing medicine for over 20 years and is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are H Influenzae Meningitis, Diffuse Panbronchiolitis, ECHO Virus, Pneumococcal Meningitis, and Myringotomy.

    David S. Moon
    Experienced in Porencephaly
    Pediatric Neurology
    Experienced in Porencephaly
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    13+ years
    Languages Spoken:
    English
    Accepting New Patients

    David Moon is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Moon has been practicing medicine for over 13 years and is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Tourette Syndrome, Transient Tic Disorder, Cerebral Palsy, and Focal Dystonia. Dr. Moon is currently accepting new patients.

    Learn about our expert tiers
    Casey J. Madura
    Experienced in Porencephaly
    General Surgery
    Experienced in Porencephaly
    General Surgery

    Corewell Health Pediatric Neurosurgery - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    18+ years
    Languages Spoken:
    English

    Casey Madura is a General Surgeon in Grand Rapids, Michigan. Dr. Madura has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Chiari Malformation Type 2, Chiari Malformation, Chiari Malformation Type 1, Hydrocephalus, and Craniectomy.

    Todd W. Vitaz
    Experienced in Porencephaly
    Neurosurgery
    Experienced in Porencephaly
    Neurosurgery

    Corewell Health Grand Rapids Hospitals Neurosurgery - 275 Michigan St NE

    275 Michigan Street Northeast, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    31+ years
    Languages Spoken:
    English
    Accepting New Patients

    Todd Vitaz is a Neurosurgery provider in Grand Rapids, Michigan. Dr. Vitaz has been practicing medicine for over 31 years and is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Posterior Fossa Tumor, Primitive Neuroectodermal Tumor (PNET), Pituitary Tumor, Awake Craniotomy, and Turbinectomy. Dr. Vitaz is currently accepting new patients.

    Daniel Fain
    Experienced in Porencephaly
    Pediatric Neurology
    Experienced in Porencephaly
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    34+ years
    Languages Spoken:
    English
    Accepting New Patients

    Daniel Fain is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Fain has been practicing medicine for over 34 years and is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Legius Syndrome, and Seizures. Dr. Fain is currently accepting new patients.

    Steven Deroos
    Experienced in Porencephaly
    Pediatric Neurology
    Experienced in Porencephaly
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    32+ years
    Languages Spoken:
    English
    Accepting New Patients

    Steven Deroos is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Deroos has been practicing medicine for over 32 years and is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Cerebral Palsy, Spastic Diplegia Infantile Type, Moebius Syndrome, and Dandy-Walker Syndrome. Dr. Deroos is currently accepting new patients.

    Joseph A. Petronio
    Experienced in Porencephaly
    General Surgery
    Experienced in Porencephaly
    General Surgery

    Corewell Health Pediatric Neurosurgery - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    42+ years
    Languages Spoken:
    English
    Accepting New Patients

    Joseph Petronio is a General Surgeon in Grand Rapids, Michigan. Dr. Petronio has been practicing medicine for over 42 years and is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Chiari Malformation, Chiari Malformation Type 1, Brain Herniation, Hydrocephalus, and Craniectomy. Dr. Petronio is currently accepting new patients.

    Robin J. Cook
    Experienced in Porencephaly
    Pediatric Neurology
    Experienced in Porencephaly
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    12+ years
    Languages Spoken:
    English
    Accepting New Patients

    Robin Cook is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Cook has been practicing medicine for over 12 years and is rated as an Experienced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Absence Seizure, Partial Seizure, Epilepsy Juvenile Absence, and Tuberous Sclerosis Complex. Dr. Cook is currently accepting new patients.

    Paul A. Mazaris
    Experienced in Porencephaly
    Neurosurgery
    Experienced in Porencephaly
    Neurosurgery

    Corewell Health Grand Rapids Hospitals Neurosurgery - 275 Michigan St NE

    275 Michigan Street Northeast, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    19+ years
    Languages Spoken:
    English
    Accepting New Patients

    Paul Mazaris is a Neurosurgery provider in Grand Rapids, Michigan. Dr. Mazaris has been practicing medicine for over 19 years and is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Brain Aneurysm, Stroke, Subdural Hematoma, Thrombectomy, and Stent Placement. Dr. Mazaris is currently accepting new patients.

    Jena M. Krueger
    Experienced in Porencephaly
    Pediatric Neurology
    Experienced in Porencephaly
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    16+ years
    Languages Spoken:
    English
    Accepting New Patients

    Jena Krueger is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Krueger has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 1, and Spinal Muscular Atrophy Type 2. Dr. Krueger is currently accepting new patients.

    Experienced in Porencephaly
    Neurosurgery
    Experienced in Porencephaly
    Neurosurgery

    Trinity Health Medical Group, Neurosurgery - Cherry

    245 Cherry Street Southeast, Suite 300, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    16+ years
    Languages Spoken:
    English
    Accepting New Patients

    John Entwistle is a Neurosurgery provider in Grand Rapids, Michigan. Dr. Entwistle has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Brain Aneurysm, Stroke, Subarachnoid Hemorrhage, Stent Placement, and Transmyocardial Revascularization. Dr. Entwistle is currently accepting new patients.

    Experienced in Porencephaly
    Interventional Radiology
    Experienced in Porencephaly
    Interventional Radiology

    Corewell Health Grand Rapids Hospitals Neurosurgery - 275 Michigan St NE

    275 Michigan Street Northeast, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    31+ years
    Languages Spoken:
    English

    Baljit Deol is an Interventional Radiologist in Grand Rapids, Michigan. Dr. Deol has been practicing medicine for over 31 years and is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Peritonitis, Secondary Peritonitis, Brain Aneurysm, Gastrostomy, and Bone Marrow Aspiration.

    Ashok K. Ramachandra
    Advanced in Porencephaly
    Pediatric Radiology | Radiology
    Advanced in Porencephaly
    Pediatric Radiology | Radiology

    Advanced Radiology Services - Grand Rapids

    3264 North Evergreen Drive Northeast, 
    Grand Rapids, MI 
     (5.4 miles away)
    Experience:
    15+ years
    Languages Spoken:
    English

    Ashok Ramachandra is a Pediatric Radiologist and a Radiologist in Grand Rapids, Michigan. Dr. Ramachandra has been practicing medicine for over 15 years and is rated as an Advanced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Cortical Dysplasia, Lhermitte-Duclos Disease, Focal or Multifocal Malformations in Neuronal Migration, and Subcortical Band Heterotopia.

    Bryan E. Figueroa
    Advanced in Porencephaly
    Advanced in Porencephaly

    Great Lakes Neurosurgical Associates - Grand Rapids

    3350 Eagle Park Drive Northeast, Suite 102, 
    Grand Rapids, MI 
     (5.4 miles away)
    Experience:
    28+ years
    Languages Spoken:
    English
    Accepting New Patients

    Bryan Figueroa is a Neurosurgery provider in Grand Rapids, Michigan. Dr. Figueroa has been practicing medicine for over 28 years and is rated as an Advanced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Pituitary Tumor, Brain Aneurysm, Dysembryoplastic Neuroepithelial Tumors (DNET), Awake Craniotomy, and Septoplasty. Dr. Figueroa is currently accepting new patients.

    Jamie L. Frost
    Experienced in Porencephaly
    Pediatric Radiology
    Experienced in Porencephaly
    Pediatric Radiology

    Advanced Radiology Services - Grand Rapids

    3264 North Evergreen Drive Northeast, 
    Grand Rapids, MI 
     (5.4 miles away)
    Experience:
    19+ years
    Languages Spoken:
    English

    Jamie Frost is a Pediatric Radiologist in Grand Rapids, Michigan. Dr. Frost has been practicing medicine for over 19 years and is rated as an Experienced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Congenital Giant Megaureter, Bronchogenic Cyst, Lhermitte-Duclos Disease, and Subcortical Band Heterotopia.

    Experienced in Porencephaly
    Pediatric Neurology
    Experienced in Porencephaly
    Pediatric Neurology

    Helen Devos Children's Hospital Neurology-Grand Rapids

    35 Michigan St NE Ste 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Languages Spoken:
    English

    Harlori Bains is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Bains is rated as an Experienced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Neurofibromatosis, Legius Syndrome, Neurofibromatosis Type 1 (NF1), and RASopathies.

    Experienced in Porencephaly
    Pediatric Radiology
    Experienced in Porencephaly
    Pediatric Radiology

    Spectrum Health Saint Marys Shared Technology Services Inc

    3264 N Evergreen Dr NE, 
    Grand Rapids, MI 
     (5.5 miles away)
    Languages Spoken:
    English

    Bogna Targonska is a Pediatric Radiologist in Grand Rapids, Michigan. Dr. Targonska is rated as an Experienced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Tenosynovitis, Aseptic and Alopecic Nodules of Scalp (AANS), Splenomegaly, and Gas Bloat Syndrome.

    Experienced in Porencephaly
    Pediatric Radiology
    Experienced in Porencephaly
    Pediatric Radiology

    Spectrum Health Saint Marys Shared Technology Services Inc

    3264 N Evergreen Dr NE, 
    Grand Rapids, MI 
     (5.5 miles away)
    Languages Spoken:
    English

    Bradford Betz is a Pediatric Radiologist in Grand Rapids, Michigan. Dr. Betz is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Aortopulmonary Window, Aorta-Pulmonary Artery Fistula, Legius Syndrome, and Accessory Deep Peroneal Nerve.

    Experienced in Porencephaly
    Neuroradiology
    Experienced in Porencephaly
    Neuroradiology

    University Of Michigan Health-West

    5900 Byron Center Ave SW, 
    Wyoming, MI 
     (8.1 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English

    Mark Tierney is a Neuroradiologist in Wyoming, Michigan. Dr. Tierney has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Rathke Cleft Cyst, Brain Aneurysm, Melorheostosis, Melorheostosis with Osteopoikilosis, and Endovascular Embolization.

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    Last Updated: 04/28/2026

    What is the definition of Porencephaly?

    Porencephaly is a rare condition that affects the central nervous system. People with Porencephaly develop fluid-filled cysts or cavities in the brain either before or shortly after birth. The severity of the condition and the associated signs and symptoms vary significantly based on the size, location, and number of cysts. Common features include developmental delay, reduced muscle tone (hypotonia), seizures, macrocephaly (unusually large head size), spastic hemiplegia, speech problems, delayed growth, and intellectual disability. Porencephaly is usually the result of damage from infection or stroke after birth. In these cases, the condition occurs sporadically in people with no family history of the condition. There is an inherited form of the condition called familial Porencephaly, which is caused by changes in the COL4A1 or COL4A2 genes and is inherited in an autosomal dominant manner.

    When should I see a Porencephaly doctor near Grand Rapids, MI?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Porencephaly doctor near Grand Rapids, MI?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Porencephaly doctors near Grand Rapids, MI?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Porencephaly doctors near Grand Rapids, MI?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Porencephaly doctor near Grand Rapids, MI?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Porencephaly doctor search results page. 

    Why is it important to get a second opinion from a different Porencephaly doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Porencephaly doctor near Grand Rapids, MI?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Porencephaly doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Porencephaly doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Porencephaly doctors near Grand Rapids, MI?

    Look for the filter feature on the left side of the Porencephaly doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Porencephaly doctor that offers video calls?

    Look for the filter feature on the left-side of the Porencephaly doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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